Blogs
We live your reality. Feeling what you feel without having to imagine what it must be like for parents raising children with special needs. Our family has experienced friends distancing themselves because they cannot relate, don't understand or are intimidated by our son. We've laid awake at night and wondered, sometimes with anger and frustration, "Why my son?" Sitting in the front row seat on life’s emotional rollercoaster, we've felt hurt, lost, angry, alone, joyful and blessed with our family situation.
Go to Blog>>
Go to Blog>>
One little amazing girl was born in 2004. And she has changed my life in extraordinary, and heretofore unknown, ways. In October of that year, Isabella came into our world, diagnosed with Joubert Syndrome. It is a rare, genetic malformation of the cerebellum, specifically the vermis. Isabella has an amazing drive, and wakes every morning with a smile and goes to sleep every night with a big hug. Despite her challenges, she is going into Kindergarten in the fall, takes horseback riding lessons, swim lessons, and plays soccer. Her perseverance is an extraordinary testimony to the human spirit.
Go to Blog>>
Go to Blog>>
I am a grandmother to beautiful Hailey. Hailey is 3 years old and has Athetoid Cerebral Palsy. Despite her challenges, Hailey always seems to persevere. She is the most determined person I know. Hailey has shown us, as a family, what is truly important in life. She has given us the opportunity to discover the depth of our character and to be stronger than we ever thought we could be.
Go to Blog>>
Go to Blog>>
Born three months premature in Lithgow (the foot of the Blue Mountains New South Wales Australia) weighing just two pounds six ounces and able to fit in my parents hands I was not expected to live given a fifty/fifty chance at life. Eventually I was diagnosed with Cerebral Palsy. Read my blog entries and see the struggles and triumphs of my every day life.
Go to Blog>>
Go to Blog>>
This is a guest blog that will feature guest bloggers who want to share their exceptional families and experiences with the EFTV community.
Go to Blog>>
Go to Blog>>
We always knew our little girl was one in a million... we just didn't realize what exactly that meant until March of 2008. Katy is one of only two confirmed cases of a specific deletion on chromosome 6 currently in the world. Please read on to find out more about our little girl.Katy was born March 5, 2005, appearing to be in good health except that both of her hips had been dislocated due to the stress of a breech position in the womb.
Go to Blog>>
Go to Blog>>
