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Janet's Blog

Traveling Bears

Do you know a child who would  love a visit from a teddybear who just so happens to have the same disability as they do? These friendly bears are on a very special journey spreading awareness, encouragement and love by visiting families all over the world. This mission was brought to life by a very young 7 year old boy named Elijah and his mom. They wanted to raise awareness for his diagnosis Pediatric Stroke, and thus the Traveling Awareness Bears were born.The effort  took off and was even more successful than they could have ever imagined, bringing along th...

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Wheelchair Acceptance

 Well, yesterday was an extremely emotional day for our family. Though some of us handled the news better than others. It wasn’t a total surprise when Natalie called me to let me know the news. Hailey’s PT recommended that Natalie contact children’s hospital about getting her a wheelchair.  There has been talk about this in the past, so I don’t know why it hit me so hard, but it did. Like a ton of bricks. I was at work and I just couldn’t wrap my head around it, I couldn’t get myself together and I felt awful when my waves of emotion took the place of getting my job done, but  I couldn’t concentrate, I just wanted to  go h...

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Beautiful Blessing

Well, we all know how much I really enjoy spending time with Miss Hailey and Thanksgiving certainly is a perfect time to reflect on all of the blessings we have in our lives. I would be lying if I said that it didn’t bother me to watch her struggle as she attempted to eat the whipped cream off of the spatula from the pudding pie that she and Natalie made for dessert. Of course I wish that such a simple task could be accomplished without such difficulty, but for Hailey, it will always be difficult. But we will never forget that the mere fact that she is here today is truly a blessing.Life certainly has a way of throwing you curve bal...

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Awareness, it really makes all the difference in a persons life.

  Nobody likes to be talked down to or treated like they are invisible, but it happens everyday to people who have disabilities or use wheelchairs to get around. It is not typically done on purpose, but is often because of the lack of knowledge or lack of interaction with someone who has a disability. More often than not when you first meet a person who has an obvious disability, maybe they are in a wheelchair, or maybe they are blind or have vision impairments. You  become a bit uncomfortable, you are not sure what to say.  Sometimes pity, fear of the unknown, general awkwardness and a lack of understanding makes you s...

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"A Better Person"

"A Better Person" A Better Person If you close your eyes you'll never see, just how much she means to me. All I ask from this day on, is to stand beside her and cheer her on. She'll bring you places that you've never been, and show you love from deep within. She'll melt your heart a little more each day, until it seems her disability has faded away. But it's still there, i'll tell no lies. It sometimes appears, to be in disguise. You no longer see through rose colored glasses. As this vision you once had, slowly passes. The child you once thought of as frail and weak, instead has made you implore defeat. Her health sometimes may seem...

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