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Educating others about Special Needs

My post today is similar to others I’ve seen on the blogosphere, but I thought it was important to share and I hope that you add a few of your own to this list as well as share the link on your facebook page and post it on your personal blogs. Not everyone knows the right things to say and it is up to us to educate them. It just may help some of your friends and family members to understand  your child better and to open the lines of communication.   
I think most of you will agree that  people who say these things are not mean spirited people, but good people who simply don’t understand that what they are saying or not saying can sometimes be hurtful.
Each of our children may have a different diagnosis and some may relate while others may not, but here are just a few things that you should NOT say to parents or family members who have people in their lives with special needs. Feel free to add what you think others should not say in the comment section.
What NOT to say...                                                              
-God only gives us what we can handle; He must think you two are special parents
- Using the word “Autistics” to describe people on the spectrum.
- Remember, you have to take care of yourself, so you can take care of them.
- He’ll speak when he’s ready to.
- When looking at my son using a reverse walker, “Wow, we need to get one of those for my (typical) 10 mo old so he/she can walk better!”
- They’ll EAT when they’re ready. They’re not going to starve to death.
- You are so much stronger than me… I don’t know how you do it
- Pointing out that my non-walker shouldn’t be in a stroller.
- They just need discipline.
- You two are amazing for adopting two special-needs children. They are SO LUCKY.”
- For a child that has tics, saying, “Do you think she is doing it for attention?”
- Anything that implies that sensory issues are not real or that we’re playing into their “fear.”
- When people say they are sorry or offer condolences for a child with disabilities.
- What’s wrong with her?
- Don’t worry she’ll catch up.
- She’ll grow out of it.
- Is your other son/daughter “normal”? or “Are your other kids ok?
- You are so much stronger than me and/or I don’t know how you do it.
SAY THIS! Instead
- I don’t know what to say to you, but I love you.
- How are you doing? (and actually listen to the answer)
- “How Can I Help?
-I just wanted  you to know I was thinking about you.
- I just made an extra dinner when I was cooking for us, can I drop it by now?
-  I know you had an appointment yesterday, how did it go?
- I’m on my way to the store, want me to grab you some milk or bread?

Always keep in mind that we would like people to perceive our kids as people who have feelings, and when you see our kids in a wheelchair or maybe with leg braces, please do not pull your curious child away from ours. By doing that you are sending the wrong message to both children. You are indirectly telling your child that my child is someone to fear. Thus making it much more difficult for acceptance. 

3 comments

Sheanati Holcomb wrote 1 year 14 weeks ago

wrong

This goes along with "what's wrong with her"......Before my son was even one we were at a petting zoo and I was handing him to his pawpaw, and I didn't hear this but my mom did. As I was handing Dax to him these women behind us were wispering and one said "there must be something wrong with him". My mom didn't tell me until we left, I assume she didn't want me to get upset. I'm sure at the time I probably would have, but now you realize that even though it still bothers you, it's the lack of knowledge that makes people say this. And my reply to that is "There is nothing WRONG with him, he is just DAX!" But sorry to get on a soap box! I absolutely love this blog!!! And you are 100% right, we just need to EDUCATE! :)

Renee Burton Charlan wrote 1 year 14 weeks ago

Awesome

Awesome Sheanati :-)

 

It's so great to have an attitude where you want to educate instead of get upset! It takes awhile to reach that place but when you get there it is so much easier to let people in.

 

Renee

Renee Burton Charlan wrote 1 year 14 weeks ago

"Remember, you have to take

"Remember, you have to take care of yourself, so you can take care of them." As a parent I actually think this one is true!

The best way to remember is to use "peope first language",

Things like "my child has special needs" not "my special needs child" special needs does not define your child so dont let it.

You wouldn't say "cerebral palsy boy" or "Downsyndrome boy" so don't say "autisic boy" You would say "my child has cerebral palsy, my child has downsyndrome or my child has autism". Cerebral Palsy, Downsyndrome or Autism does not have my child.

The person always comes first!

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