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Stephen's Blog

That Trophy Means Everything

I am still amazed.  The season is short, only about seven weeks, but the kids play with heart.  And the buddies are there to see to it that everyone succeeds and has a good time. Isabella joined the VIP Soccer Program about a year ago.  Kids with special needs are paired up with a buddy (or two) and begin the process of learning and playing soccer.  The buddies are soccer players themselves – or at least most of them are – while some are volunteers or fellow family members. Soccer is an intense game, and I, by no means, am an expert.  But, it’s a fast-paced, high-energy sport.  And for a lot of our kids, that’s a...

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A Different Ability In honor of all who have a different ability

  Perhaps I cannot walk, Or may not just yet talk, But my life down here on Earth Is mine by right of birth.   Do not think of me as disabled, Because I sometimes sit at a special table I am who I am, and that’s always just me I am blessed with a different ability.   It is hard sometimes for me to learn The things about which I often yearn But please do not offer me pity Because of my different ability.   In my life there is joy, happiness, and success I have family and friends, so am quite blessed I work very hard, and sometimes struggle So rather than feel sorry for me, offer me a snuggle.   Sometimes I feel afraid,...

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The IEP Meeting...

Every IEP meeting is a new experience.  Luckily, my wife and I are always prepared – and some may say even over prepared.  We have never truly had a bad experience, even though we have heard some horror stories from friends, neighbors, and colleagues who run the IEP-gauntlet just as frequently as we do. We’ve always looked at the IEP experience as more than just a requirement.  It’s more than just a duty for parents of kids with special needs.  It is an opportunity to advocate.  It is one singular moment to be the voice of a child.  As a Dad, it is an opportunity for me to both protect her interests, and liberate her through access. And nothing highlighted this more than our recent IEP for Isabella’s transition from preschool to kindergarten.  It’s an awesome sight, the IEP meeting.  And I mean awesome in a frightening sense.  This time ar...

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Father ~ Daughter Date Night

Mom was at a meeting tonight, so Isabella and I went on a date.  We like to call it our lasagna date.  We head to the mall, find the food court (which invariably has an Italian choice), order one large lasagna, a milk for her and a Diet Pepsi for me.  We roam the food court to find a table and begin our meal together. Our date is one held in silence.  The moment is for us to share.  Hundreds of people could be around us, but I only comprehend her presence.  Our communication takes place between our eyes, our glances at the people walking by, and a short dance to the music playing over the loudspeakers.  Our...

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Isabella's Journey

stephens family    Isabella Madeleine Mack was born on October 4, 2004.  Her parents, Stephen & Denise, were thrilled at the arrival of their first-born child.  The pregnancy was very pleasant, therefore you can imagine the surprise when shortly after Isabella’s arrival, she turned blue and began moving her arms uncontrollably.  She was kept in Intensive Care at Lake Forest Hospital for monitoring – doctors initially suspected epilepsy.  When the results were inconclusive, they decided to pursue a CT and MRI.  The original screen was also determined to be inconclusive.  The doctors were concerned; at just one day old, Isabella was transported to Evanston Hospital for further evaluation.   Stephen stayed with Isabella for the next two days as Denise...

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