Our son Zachary has received botox and phenol injections several times over the last couple years and we've seen great results. His range of motion and use of hands, arms, legs is greatly improved. We can really notice when the effects start to wear off. He's scheduled to get another round of treatment very soon, because he is getting very stiff once again. We know Zach will get more and more used to the treatment and it could eventually not work for him. Doctors have given us various suggestions for medications, but all the meds carry risky side effects and with Zachary's history of seizures, we just don't want to take the chance. So we're stuck in this limbo no knowing how many more times we can use this botox treatment to help his spasicity while also doing everything we can to hold off medication.
Has anyone had great experiences with medication though, such as baclafen, or artane? And has anyone had their kiddos get so used to botox that it doesn't work on them any more?