8 years ago, the internet had very little information on my daughters condition.
There was little or no information on AMC, how to treat & manage the disorder ,  & no support from other families.   The pictures searches were of horrible images you would never want to see or show your children.  No smiling faces anywhere!  

I launched my daughter's website as a diary / scrapbook for me and for my family in New York to keep up with Abby's progress.  From there I received 100's of emais from other families offering support or looking for support.   The response to her little place on the web was so overwhelming that I had to create a support website for Arthrogryposis Multiplex Congenita.   A message board similar to this -  but not as fancy :o)  We have had a wonderful support family who banded together to create a board of directors to establish the first non-profit for Arthrogryposis Multiplex Congenita.  Each year we hold gatherings for our families to offer support, workshops and activities for our families to enjoy. 

If you are a family or know of a family affected by Arthogryposis Multiplex Congenita - please look us up at amcsupport.org for information on our yearly conventions,  support message boards, or our weekly chats.  You will see many smiling faces & up to date information.  The little girl in the white dress is my Abby.  

We are also on Facebook.    

June 30 we celebrated our 1st ever Awareness Day.  We had such an amazing turn out of support for our families and friends. 

Many friends and family sported BLUE in support of Arthrogryposis Multiplex Congenita!  It was such an amazing experience.