Do you have a child with PKS? Please tell us more!

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Sun, 01/31/2010 - 10:04

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Gretchen Peters

Joined: 01/27/2010

My son Simon is 5 years old. He is developmentally about 5 months old. He has seizure, hearing and vision impairement, dev. delays. He was born with a cleft lip. He also has hypotonia and nystagmus. He's a good happy little boy and I love him so much!! I do a website at www.simonpeters.org. for him.

I also helped found a nonprofit org for PKS called PKS Kids. www.pkskids.net.

Gretchen
We live in Michigan.

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