The Joubert Syndrome and Related Disorders Foundation is expanding:)
We are an international organization serving people with:
We offer a website; Yahoo!Group support site; Facebook group; quarterly newsletter and biennial conference. The next conference will be in July, 2011 in Orlando, Florida at the Orlando DoubleTree on International Drive. Room rates are only $92/night.
There will also be a two-day Scientific Symposium adjacent to the family conference.
Please check us out:)